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BUILDING CAPACITY Dementia Ventures is building community capacity to include people living with dementia and their care partners in meaningful activities! When communities provide diverse opportunities for these people to engage, they can remain vibrant contributors to community life well beyond a dementia diagnosis. Living with dementia shall include pursuing one’s passions! ​Dementia Ventures invites you to get involved in creating a more inclusive community and increasing social citizenship for people living with dementia. ​ Join us in adapting current programs or creating new ones that are inclusive and enable people living with dementia to socialize according to their interests. Westside Seniors Hub Partner Organizations have a variety of opportunities underway to be more inclusive. Join any of our current projects described here . There are opportunities for anyone to help make communities more dementia-friendly. ​ Get Involved Current Hub Partners Projects SoundBytes Series Fireweed Club News & Events Resources ​ WE NEED DIVERSE PARTNERS TO HELP BUILD CAPACITY FOR GREATER INCLUSION! Everyone's skills and experiences can make a difference. Perhaps you are experiencing cognitive difficulties a care partner a program leader a professional working with seniors a motivated volunteer YOU can assist Hub Partner Organizations develop appealing and sustainable arts , social , fitness and volunteer activities. ​ Hub Partners want people living with dementia and their care partners to express their needs and desires. Partners also need the assistance of program leaders, motivated volunteers, and professionals working with seniors. THE BIGGER PICTURE... COLLECTIVE ACTION BY ELDERS AND THEIR CARE PARTNERS From 2019-2023, the Westside Seniors Hub is focusing on Dementia Ventures in collaboration with the University of British Columbia and Lakehead University in Thunder Bay, Ontario. Find out more about the UBC and Lakehead University research team members here . The Public Health Agency of Canada is funding the umbrella project called Building Capacity for Meaningful Participation by People Living With Dementia . It is one of the first community-based research projects funded under a 2019 Agency comprehensive plan: A Dementia Strategy for Canada .

PAST PROJECTS DEMENTIA VENTURES September 2023 - March 2025 Additional PHAC funding allows Dementia Ventures projects to deepen their impact. Initiatives elsewhere in BC will involve people living with dementia and community members to create new engagement programs, and result in publication of an Action Guide that offers insights for communities building capacity for greater social citizenship by people experiencing dementia. DEMENTIA VENTURES - BUILDING CAPACITY PROJECT September 2019 - March 2023 Building Capacity for Meaningful Participation by People Living with Dementia , an initiative funded by the Public Health Agency of Canada (PHAC), aimed to enable people with dementia to participate in community life as full social citizens. The project was a partnership between researchers at the University of British Columbia and Lakehead University, and their community partners: members of the Westside Seniors Hub in Vancouver and the Northwest Dementia Working Group in Thunder Bay, a coalition of people with lived experience, care partners, and researchers. In Vancouver, where the initiative is known as Dementia Ventures, six Hub Partners implemented programs that created opportunities for active involvement of people with dementia, such as a virtual memory café, a buddy program, outdoor activities, and discussions among faith-based congregations. Read more about Dementia Ventures here and Hub Partners’ stories here . CYCLING WITHOUT AGE EVENT September 28, 201 9 Cycling Without Age Vancouver, in association with Kitsilano Neighbourhood House and the Westside Seniors Hub, are hosting safe and scenic trishaw rides along the Arbutus Greenway on September 28th from 10:00am to 2:00pm. Trishaws are three-wheeled cycles where you sit in the front and experienced pilots pedal you from behind. Our mission is to break the elderly free from social isolation. Make them smile. Make new memories. And let them be part of society again and thereby renew their appetite for life itself. We give them the right to wind in their hair. Cycling Without Age is based on generosity and kindness. Event HUbBYTES NEWSLETTERS July, September, November 2019 and re-launched December 2021 - present In 2019 Hub Council began compiling resources of potential value to Hub Partner Organizations that we encountered as we attended events and made community contacts. The MailChimp illustrated newsletters are now sent out quarterly to Hub Partners and community members who sign up. Read current and past editions and sign up here . DEMENTIA PROJECT - HUB FIRST STEPS TOGETHER October-November 2018 Hub Council convened a working group of representatives from Partner Organizations to discuss and decide upon actions to be taken after a presentation about Alzheimer cafés and other dementia-friendly initiatives. At two meetings, some Guiding Principles were drafted. First Steps Together 2017-2018 WALK AND BE SEEN CAMPAIGN The 2017-2018 Vancouver Walk and Be Seen (WBS) campaign was a great success! The finale held in March included presentations by Safety Ambassadors from 17 organizations from Metro Vancouver. Seniors were involved in organizing neighbourhood Walk and Be Seen projects. For those who attended the finale, there was no doubt that many were Proud to be Seniors and Proud to be Seen-iors! During the campaign, volunteer Ambassadors spoke to seniors in their communities about pedestrian safety and the benefits of increasing their visibility in low-light conditions by wearing reflective or light-emitting gear. The comments, stories and survey results collected in this campaign clearly showed grassroots support for increased pedestrian visibility. 2018 WBS Report FORUM ON SENIORS HOUSING ON THE WESTSIDE OF VANCOUVER July 2017 The Westside Seniors Hub, through the Jewish Family Services Agency, received a grant from Vancouver Coastal Health to research seniors housing on the Westside of Vancouver. A researcher interviewed more than forty stakeholders, from housing experts to seniors with housing issues. The report Seniors Housing on the Westside of Vancouver is based on these interviews. The Hub then organized a half-day Housing Forum on April 26, 2017 to further explore housing issues with those interviewed and important stakeholders. The Forum included panel presentations on housing innovation by leaders from Kitsilano Neighbourhood House, the United Way of the Lower Mainland, LaneFab and Calling Ministries, and 36 participants joined two consecutive groups to explore key issues and formulate recommendations. Forum Report 2016-2017 WALK AND BE SEEN PILOT PROJECT Walk and Be Seen (WBS) was a volunteer pilot project on the Westside of Vancouver involving senior pedestrians. It was designed to promote walking during low-light conditions while wearing reflective apparel in response to statistics that show senior pedestrians experiencing the highest number of fatalities from collisions in Vancouver. The project registered 132 participants who agreed to wear free reflective gear (cloth sash or LED slapband), tally walks of any length, and provide feedback. Upon completion, 79 registrants completed a survey and provided comments. An Action Mini-Grant (VGH Trauma Services, Vancouver Coastal Health) provided initial funding with Kitsilano Neighbourhood House, Mountain Equipment Coop, the Jewish Family Services Agency, and WalkMetroVan contributing additional funds and administrative support. 2017 WBS Report 10th AVENUE HEALTH PRECINCT PLANNING UPDATES May 2017 The City of Vancouver Transportation Department undertook a two-phase public consultation process in 2015-2016 regarding redesign proposals for the West 10th Avenue ‘Health Precinct’ (Cambie to Oak Streets). Seniors, persons with disabilities, and many stakeholders provided feedback on those proposals. The Hub noted a few significant design changes as a result of citizen input. NATIONAL SENIORS DAY FAIR October 2015 Event ELDER ABUSE INFORMATION WORKSHOP June 2015 Event DEMENTIA-FRIENDLY TRAINING SESSIONS April 2015 A series of three training sessions with presenters from the Alzheimer Society of BC were arranged and offered to staff and volunteers of Hub Partner organizations and the general public. Report

JOIN THE HUB There are many ways to become involved in the Hub. We are always looking for new members. BECOME A PARTNER ​ If you are a public, non-profit, or faith-based organization that serves seniors on Vancouver’s Westside, we would like to collaborate with you! JOIN THE HUB COUNCIL ​ Learn more about our Westside Seniors Hub Council, composed of volunteer seniors or those who work with seniors. We are continuously recruiting for new members. JOIN COMMITTEES Hub Committees are issue-based, action-oriented groups made up of representatives from the Council, Partner Organizations, and community. From 2015-2019 we had 3 active committees working on various projects : health & wellness; access & mobility and communications. Given the holistic approach of our current project, Dementia Ventures, committee members are now working together to address issues collaboratively. Learn about our Hub Partners Contact us to become a Partner Learn about the Hub Council Contact us to join the Hub Learn about Hub Committees Opportunities to get involved

HUB WESTSIDE SENIORS ACCIÓN COLECTIVA POR Y PARA MAYORES Hub brochure here OUR MISSION To build a more responsive and resilient community for seniors on Vancouver’s Westside through the power of collective action. OUR KEY GOALS To identify and promote awareness of Westside seniors’ issues and priorities ​ To improve programs and services for seniors on the Westside through collective action by Hub Council, Hub Partner Organizations, and community organizations ​ To encourage seniors to become more engaged in their community WHAT IS THE HUB STRUCTURE? The Hub is comprised of Partner Organizations, a Hub Council, and action-oriented committees. PARTNER ORGANIZATIONS serve seniors on the Westside and have an interest in collaborating with others to support seniors in their community. They meet quarterly to share information about resources and assets, identify emerging issues, and collaborate on building a range of integrated services for seniors. They work with the Hub Council and serve on committees to act on identified issues and represent the Hub to the public and various constituencies. Partners include public entities, non-profits, and faith-based organizations that provide services for seniors. THE HUB COUNCIL is composed of several Westside volunteer seniors who have knowledge of seniors’ issues, experience working on action-oriented teams, and skills to work collaboratively with each other, Partner Organizations and community members. They meet monthly to identify priorities and direct movement towards collective action. THE COMMITTEES have representatives from the Council, Partner Organizations, and the community. They meet as needed to focus attention on particular issues or activities by sharing information, suggesting to the Council what approaches might work, and planning events. They act on behalf of seniors to bring attention to issues and gaps in services. Their work engages businesses, government agencies, non-profit agencies, and the public in moving towards a community where seniors can have their needs met and age well. WHAT CONSTITUTES THE WESTSIDE? ¿QUÉ CONSTITUYE EL LADO OESTE? Definimos el área de influencia del Westside Seniors Hub como: Al oeste de Ontario Street, hasta el final para incluir UBC y Endowment Lands Al sur de Cornwall Street y False Creek Al norte de Marine Drive Tenga en cuenta que el área de influencia no incluye la península del centro ni la isla Granville. Los socios cuya oficina se encuentra fuera de nuestra área de influencia pueden unirse a nosotros si están sirviendo activamente a las personas mayores de Westside. HOW DID THE HUB EMERGE? The concept of a seniors hub first emerged through a 2009 research report entitled “Sustaining Seniors Programs through the Neighbourhood House Model,” which focused on opportunities for seniors at Kitsilano, Kiwassa & South Vancouver Neighbourhood Houses. ​ In 2010, South Vancouver Neighbourhood House received pilot funding from Vancouver Coastal Health – SmartFund, City of Vancouver, United Way, and the Vancouver Foundation to develop the South Vancouver Seniors Hub and produce an Implementation Plan and Seniors Hub Toolkit. ​ This led to Kitsilano Neighbourhood House receiving a 2013-2014 Vancouver Foundation grant for a Seniors for Seniors Project: Building a One-Stop Place for Westside Seniors. One of the aspects of this project was to develop a Westside Seniors Hub. A number of community members and seventeen senior-serving Westside organizations met at a visioning round-table in January 2014 to explore the potential benefits and nature of a Westside Hub. Several subsequent planning round-tables developed the structure of the Hub. In addition, they drew up Partner Collaborative Agreements, wrote a Hub Council Member job description, and both recruited and interviewed Hub Council applicants. ​ By February 2015, appointments to the Hub Council had been made and the first joint meeting of Partner Organizations and Hub Council members took place. The Hub has sought grant funding for various projects and operated with paid contractors. Now it has administrative support from Kitsilano Neighbourhood House and volunteer efforts to provide Partners with relevant information about diverse seniors' issues. Westside Seniors Hub brochure here SPONSORS ¿CÓMO SURGIÓ EL HUB? El concepto de un centro para personas mayores surgió por primera vez a través de un informe de investigación de 2009 titulado “Programas de mantenimiento para personas mayores a través del modelo de casas de vecindario”, que se centró en oportunidades para personas mayores en Kitsilano, Kiwassa y South Vancouver Neighborhood Houses. En 2010, South Vancouver Neighborhood House recibió financiación piloto de Vancouver Coastal Health - SmartFund, la ciudad de Vancouver, United Way y la Fundación de Vancouver para desarrollar el South Vancouver Seniors Hub y producir un plan de implementación y un kit de herramientas para Seniors Hub. Esto llevó a Kitsilano Neighborhood House a recibir una subvención de la Fundación de Vancouver 2013-2014 para un Proyecto de Personas Mayores para Personas Mayores: Construcción de un lugar único para personas mayores del Westside. Uno de los aspectos de este proyecto fue desarrollar un Westside Seniors Hub. Varios miembros de la comunidad y diecisiete organizaciones de Westside que sirven a personas mayores se reunieron en una mesa redonda de visión en enero de 2014 para explorar los beneficios potenciales y la naturaleza de un Westside Hub. Varias mesas redondas de planificación posteriores desarrollaron la estructura del Eje. Además, redactaron acuerdos de colaboración con los socios, redactaron una descripción del puesto de los miembros del Hub Council y reclutaron y entrevistaron a los solicitantes del Hub Council. En febrero de 2015, se habían hecho nombramientos para el Hub Council y se llevó a cabo la primera reunión conjunta de Organizaciones Socias y miembros del Hub Council. Desde entonces, el Hub ha buscado subvenciones para varios proyectos y ha operado con contratistas pagados, apoyo administrativo de Kitsilano Neighborhood House y esfuerzos voluntarios. PATROCINADORES Desde sus primeros inicios, el Hub ha recibido apoyo financiero de varios patrocinadores. Estamos agradecidos por su confianza y reconocimiento de la misión y los objetivos del Hub en nombre de las personas mayores. Volver a la cima

DEMENTIA VENTURES ​ TOOLS FOR ENGAGEMENT ​ ​ ¿QUÉ CONSTITUYE EL LADO OESTE? Definimos el área de influencia del Westside Seniors Hub como: Al oeste de Ontario Street, hasta el final para incluir UBC y Endowment Lands Al sur de Cornwall Street y False Creek Al norte de Marine Drive Tenga en cuenta que el área de influencia no incluye la península del centro ni la isla Granville. Los socios cuya oficina se encuentra fuera de nuestra área de influencia pueden unirse a nosotros si están sirviendo activamente a las personas mayores de Westside. WHAT IS THE RECIPE FOR SUCCESS IN FOSTERING RESILIENCE? ​ Dementia Ventures aims to reach a broad range of stakeholders and provide community organizations with tools to engage effectively with people experiencing cognitive challenges. Let’s give them more opportunities! And how? Let the voices and experience of loved ones living with dementia inform the planning of meaningful activities that bring joy to everyone involved! You will find some amazing tools below to help you engage and make a difference. Powerful Words & Approaches Concise Rationales for Change Meaningful Engagement Top of Tools for Engagement Concise rationales POWERFUL WORDS & APPROACHES Practice Tools & Factsheets (I-CAARE) A Quick Guide To: Approaches ; PIECES of My Relationships (Guidelines, Questions, Family Supplement); Medicine Wheel: Preventing Dementia in Indigenous People by Aging Well ; The Pathway of Dementia Person-centered Language Guidelines Alzheimer Society of Canada “By being more conscious of the language we use, we can avoid reducing individuals with Alzheimer’s disease and other dementias to a series of labels, symptoms or medical terms.” Dementia & the Media Dementia Alliance International Organizational philosophy:”Nothing about us, without us.” Approach conversations with and about people living with dementia using respectful language that does not stigmatize and demean. CONCISE RATIONALES FOR CHANGE Why Arts-based Activities? Westside Seniors Hub, Vancouver, BC Rationale for social engagement through the arts, credible evidence, and links to model programs that demonstrate how arts-based creative activities can have profound impacts on people at every stage of the dementia trajectory. Flipping Stigma on Its Ear Toolkit Taking Action Against Stigma and Discrimination Associated With Dementia University of British Columbia, CIHR Action Research Project “The purpose of this toolkit is to recognize and respond to this stigma and discrimination…designed by people with dementia to help others – including other people living with dementia, service providers, physicians, family members and friends – to address the challenges of stigma and discrimination.” Hear from the experts who live with dementia – what they experience, how they respond to stigma and discrimination as advocates for themselves and others, how they build skills and competence. Powerful tools from people living with dementia with more being developed for support persons and researchers. What is the Building Capacity Project all about? Westside Seniors Hub, Vancouver, BC Meaningful Engagement MEANINGFUL ENGAGEMENT Meaningful Engagement: A Resource Guide (Alzheimer Society of Canada) “A Resource Guide for staff and leadership volunteers …to foster relationship building between staff and leadership volunteers and people with dementia…improve the experience of meaningful engagement for both the organization and the person with dementia…build capacity within organizations to collaboratively address the needs of persons with dementia.” Tipsheet for accessibility & equity in online engagement during COVID-19 MJ Wosk Centre for Dialogue, SFU, Burnaby, BC “It is important to consider how community members’ identities and experiences may impact their ability to learn about, access or participate safely in an engagement—and tailor plans to suit diverse needs.” Beyond Inclusion: Equity in Public Engagement MJ Wosk Centre for Dialogue, SFU, Burnaby, BC “Hearing from people with diverse lived experiences leads to more innovative ideas, better decisions, greater public support of outcomes…This guide is designed for individuals sponsoring or planning public engagement initiatives that will inform decision-making...outlines some factors practitioners can reflect on when scoping and designing engagement processes.” Healthy Community Engagement Action Guide PlanH, BC Healthy Communities Featuring community examples, resources, strategies and other useful information, this guide helps local governments plan their community input process to ensure…equity-centred, inclusive community engagement…to create healthier, more accessible communities. Making Your Workplace Dementia Friendly Alzheimer Society of BC Specific resources for professionals who are in legal, financial, housing, and recreation professions … ”to understand and recognize the signs of dementia…communicate in an effective, respectful way…think about specific ways they can support a person with dementia in their work and how their workplace may become more dementia friendly.…know what resources are available to them and their customers or clients.” Busting Dementia Stigma: One Children's Book at a Time WA Dementia Action Collaborative “Are you a parent, teacher or librarian who wants to help build dementia awareness and challenge stigma? Children’s books can be a great tool! The criteria below can help you evaluate children’s books and select ones that carry a respectful, stigma-busting message.” Back to Resources - Dementia Ventures

GET INVOLVED Building capacity for meaningful community participation by people living with dementia is a collaborative effort that requires: ​​ identifying, expressing and responding to needs establishing and strengthening relationships creating accessible opportunities using diverse skills and abilities to have impacts We invite you to contribute your energy and creativity to plan, deliver and sustain Dementia Ventures . ​ This is a collaborative effort driven by the expressed needs of people living with dementia and their care partners. ​ Please click on the links below to see what your contribution could be. ​ ​ ​ Person living with dementia Care Partners Program Leader Volunteer Professionals working with Seniors If you are interested in joining the Hub in one of these roles, Hub Partners would like to hear from you. ​ visit the Current Hub Partner Projects page to see which project is most attractive and contact the Partner sponsoring it.

Westside Seniors Hub Nuestra Organización Iniciar sesión HUB WESTSIDE SENIORS ACCIÓN COLECTIVA POR Y PARA MAYORES Fireweed symbolizes the resilience that Dementia Ventures envisions bringing to people living with dementia and their care partners. This feisty wildflower thrives in challenging conditions and brings vibrant colour to diverse landscapes year after year.We are grateful that Yukon photographer Ivan Sundby has donated this High Weed image to Dementia Ventures. Like so many, Ivan’s family has been affected by dementia. HUB WESTSIDE SENIORS ACCIÓN COLECTIVA POR Y PARA MAYORES El Westside Seniors Hub es una iniciativa que reúne a personas mayores locales y organizaciones que prestan servicios a personas mayores para garantizar que las comunidades de Westside sean lugares donde las personas mayores puedan prosperar. Sirve para proporcionar un "centro" informativo que mejora el conocimiento de los programas y servicios locales. Proporciona liderazgo en la identificación de brechas en la prestación de servicios y genera apoyo comunitario para los problemas de las personas mayores. More About Us Get Involved Current Hub Partner Projects

CARE PARTNERS YOU can help reveal challenges that need to be addressed create activities that fit with your needs as well as those you care for offer ideas for innovative initiatives participate in community conversations To partners, relatives, friends or professionals regularly involved in providing care for a person living with dementia: ​ Your voice is needed in planning and implementing activities that are feasible and engaging. Hub Partners would like to hear from you! ​ Visit the Current Hub Partner Projects page to see which project is most attractive and contact the Partner sponsoring it

JOB OPPORTUNITIES Westside Seniors Hub Council Join the Council's Volunteer Team Council members: We are recruiting volunteers to join us and ensure that Westside neighbourhoods are places where seniors can thrive. To find out more about the role of Council in Hub affairs, click he re . For more details about a Council member's role, please click here Digital Communications Assistant: One or two people to assist with publishing the Hub's quarterly newsletter, Hub Bytes, and/or with maintaining the Hub's website up to date. More details here D Di Family Caregivers of BC J oin FCBC's Volunteer Team Support Group Facilitators: Seeking volunteers to create a safe and open space for caregivers to share their concerns and challenges. Facilitators are people with strong listening skills, discretion, empathy and ability to empower individuals to be involved in making decisions about their own care. Host and Virtual Assistant: For our Virtual Journal Workshop for Caregivers...an ongoing program offered to to caregivers who are interested in engaging in structured writing that is private and self-reflective...You would provide technical online support to the facilitator and participants . Caregiver Support Assistant: L ooking for two Caregiver Support Assistants to provide administration support to our caregiver support team at FCBC...use your technical skills to assist with general office duties, filing, emails, help with communication and outreach. More details and application forms here ASK Friendship Society CALLS for VOLUNTEERS Volunteer driver : 1-3 hours/weekly needed on Tuesdays, Wednesdays and/or Thursdays between 12PM-3PM"Pick up meals from 2177 West 42nd Ave., Vancouver, BC, V6M 2B7and deliver to isolated seniors in the neighborhoods of Kerrisdale, Arbutus, Shaughnessy, Marpole, Dunbar and Oakridge" Bus Drivers Seniors' Outings: Take our clients and seniors from other organizations for fun bus trips around Vancouver. We require our volunteer drivers to have: Class 4 license (unrestricted); Clean Drivers Abstract; Experience driving 18-passenger bus or 9-passenger bus; (Asset) experience working with seniors Board Members: ASK is growing! Help lead and manage that process, we are looking to fill 2-4 Board positions with committed individuals who have experience in human resources, administration, fundraising, etc. Youth & student opportunities too, More details and application forms here

RESOURCES The Hub encourages everyone to know about Help Lines that provide credible information to callers with questions and concerns. Help Lines DEMENTIA VENTURES RESOURCES We also provide selected resources here for Dementia Ventures , since that is the Hub's focus in 2020-2023. Understanding & living with dementia Guides for inclusive Programming Tools for Engagement Research Reports & Data

Events - Return to top SOUND BYTES SERIES Return to top Hub Community Action That Builds Capacity The Dementia Ventures project empowers Hub Partners to build out inclusive community programming for all and adapt to include people living with dementia. They and their care partners want to remain socially engaged in meaningful activities. A collaboration with UBC’s Dr. Alison Phinney and her Building Capacity team offers financial, strategic and logistical resources so programs can welcome and support those with dementia and their care partners. We celebrated midway in this initiative with a series of vibrant online community dialogues. The theme was: “What it means to be an accepting and inclusive community.” SoundBytes wants to share wisdom from those dialogues. Here are our first nuggets. There will be many more! BC-based artist and advocate Granville Johnson spoke out about fear and the power of our perspective on Dementia Dialogue's most recent podcast episode, addressing the ways we can choose to gain some sense of control and joy back into our lives even in the face of new challenges. Watch Full Event HERE PERSPECTIVE IS EVERYTHING In the most recent podcast episode of Dementia Dialogue, Dr. Alison Phinney discusses the stigma attached to dementia diagnoses and how that impacts community support efforts. She speaks with host Lisa Loiselle and fellow podcast guest Granville Johnson, who lives with dementia himself, about the important balance to be struck between training and education on one hand, and engaging with people with lived experience on the other. The Biggest Challenge to Community Support for People Living with Dementia Watch Full Event HERE WHAT HOLDS US BACK Karen Rolston’s mother Louise started getting inklings something was a little “off” back in 2011. At the time, the Rolstons were already in the process of creating a laneway house on their property for her, so they could live close together. The timing worked out well. Louise lived there for seven years beside her daughter Karen, Karen’s husband, and their daughter. Those years were, “a beautiful opportunity for us to just wrap mom with more support and care while she was able to live in her own space,” Karen said. ​ When Karen thinks about the journey she has been on with her mom, and the reactions from people when it comes to dementia, the word that comes to mind is fear. “People find out someone has dementia, and they think, ‘Am I going to receive this diagnosis too?’ ‘Is someone I love going to get dementia?’” Rolston said. Fear seeps in and too often, people pull away. ​ “People often don’t know what to say or do, so they turn away from those with dementia instead of turning toward them with love,” Rolston said. Rolston is extremely grateful for community supports. Her mom really enjoyed the Alzheimer Society’s Minds in Motion program, the Alzheimer’s Café and the Helena choir she joined. “These community groups are where we felt really held,” she said. “It’s such a painful journey and there is still so much we can do.” ​ In this Soundbyte, Rolston offers her thoughts on how to really tune into a person’s needs and meet them where they are, rather than seeing their responses as resistance or defiance. Loving and showing up for someone with dementia is about cherishing the now, embracing their world, and accepting what is. ​ TURNING TOWARDS THE PERSON WITH DEMENTIA A care partners perspective on what helps. Watch Full Event HERE Esteemed Globe and Mail Columnist André Picard wrote Neglected No More: The Urgent Need to Improve the Lives of Canada’s Elders in the Wake of a Pandemic in 2021, a book that discusses what needs to change to shift the culture of long-term care across our country. “Picard reveals the full extent of the crisis in eldercare and offers an urgently needed prescription to fix a broken system and ensure long-term care homes are not warehouses of isolation and neglect” Penguin Random House states on their site. Care home COVID outbreaks seemed to be exploding in every region of the country at the time, drawing attention to the deplorable working conditions they had for employees, the resulting neglect residents experienced, and the total lack of support for the institutions in general. In this storyboard, Picard says media needs to highlight not just worst-case scenarios meant to shock and awe, but stories about people living quite well for a long time with dementia. Seeing more people with dementia in our day-to-day activities—including in the news— would normalize that experience as a way of reducing stigma. Lastly, he emphasized the importance of having people with dementia sit on boards and committees on which they get a real vote in the outcomes of important decisions. ANDRÉ PICARD ON THE MEDIA'S ROLE IN STAMPING OUT STIGMA Watch Full Event HERE Rob Dramer and Lilllian Ireland are self-identified elders who work with the Suzuki foundation mentoring and supporting other elders and younger generations in dialogue and action on environmental issues. They're also traveling performers who offer a multi-sensory show featuring songs they've written about biodiversity, interspersed with some familiar tunes to help audiences tap into earlier memories. Music elicits powerful connections, and they invite audience members to join in the fun alongside them and their collection of beautiful local animal puppets. On the value of art in supporting the dementia journey... Watch Full Event HERE SUZUKI ELDERS Myrna Norman is an author, artist, and dementia advocate based in Maple Ridge. In 2009, when Norman was diagnosed with Frontal Temporal Dementia and given eight years to live, she went home ready to die. But after grieving this news for a couple of weeks, Norman decided to do what she’s best at: advocating for change. She became heavily involved in initiatives that let others in her situation know they weren’t alone. Thirteen years later, Norman’s passion, generosity of spirit, and charisma have touched so many lives. Her book, “Dementia Strategies, Tips and Personal Stories,” has become an indispensable voice of validation and support. ​ Norman has participated in multi-year research studies, art-making groups and task forces including The Dementia Sisterhood, the Dementia Action Committee, Dementia Advocacy Canada, the Dementia Friendly Task Force, and now the Building Capacity Project to name just a few. She’s also collaborating with researchers and designers at Emily Carr University’s Health Design Lab to develop a series of workbooks geared at supporting researchers to engage in collaborative work with people with lived experience. And to all these roles, she brings her signature energy, compassion, and love for showing people their strength. On the value of art in supporting the dementia journey... Watch Full Event HERE POETRY A dedicated group of congregation members at Pacific Spirit United Church worked together over the course of a year to create an incredible and insightful four-part series on dementia that you can access online.​ ​ They had noticed church members struggling with cognitive decline and family members worried about finding extra care, so they dove in to offer support. Their commitment to fostering a dementia friendly culture at their church has since inspired many other groups to take action too. ​ For more details go to www.pacificspiritc.com and click on "ministries". The series is under "Beacon *shinning light on dementia." ​ BEACON *Shining Light on Dementia An Initiative to build an inclusive congregation at Pacific Spirit United Church. Summary HERE Watch Full Event HERE The Flipping Stigma Toolkit is a project where a group of people diagnosed with dementia partnered with a research team to develop an online toolkit. ​ This Action Group, funded by a research grant from the Canadian Institute of Health and Research, co-designed the toolkit to help people with dementia recognize and respond to stigma and discrimination -and to help others better understand ho to be supportive-. ​ The Goa? Flip that fear on its ear. ​ To learn more visit www.flippingstigma.com LET´S TALK ABOUT DEMENTIA THE FLIPPING STIGMA TOOLKIT An Action Group of people living with dementia came together and developed a toolkit to start a conversation about stigma and discrimination in dementia. Watch Full Event HERE Granville Johnson is an artist and teacher whose advocacy work is always led by his passion for lifting people up. In this piece, he talks about the ways his art and his lived experience inform each other. ​ He sees dementia as an opportunity for insight. “Dementia gives you a chance to express your inner self, the good, the bad and the ugly. And in that expression, there are opportunities to grow.” ​ He focuses on what he can do, rather than what he can’t. He believes the more society can get behind the idea of championing strengths rather than focusing on deficits, the stronger our community will become. Johnson lives in a remote part of Northern British Columbia and thrives in its natural beauty. ​ NEW PERSPECTIVES Shifting the conversation on dementia involves recognizing its gifts. Watch Full Event HERE Researchers and designers at Emily Carr University’s Health Design Lab use participatory design methods to catalyze, support and amplify initiatives addressing complex health challenges like dementia. “We use design methods to help engage people with dementia in initiatives that directly impact their lives,” said Lab Director Caylee Raber. The team’s current project is called Collaborate, Gather, Share—a workbook series co-designed by people with lived experience to help drive reflection around how they can be brought into research projects and how best to support those collaborations, recognizing people with dementia as experts. ​ Their recent video, “Perspectives,” paired design students with long-term care residents. They co-designed and co-wrote mini publications featuring residents’ stories. Students developed creative games and activities to help draw out residents’ stories that they then captured in zines and mini-books, some even embroidered on quilts. ​ Lastly, the team worked with Vancouver Coastal Health for four years on a project focused on shifting the culture of care in long-term facilities. All the Lab’s work focuses on how researchers and designers can use their skills and expertise to build upon work already being done—facilitating creative expression and self advocacy for people with dementia and getting those messages out to the world. ​ EMILY CARR UNIVERSITY´S HEALTH DESIGN LAB Emily Carr University's Health Design Lab employs participatory methods to lift up the perspectives of people with lived experience. Watch Full Event HERE Author, artist, and dementia advocate Myrna Norman runs a peer support group for others with dementia in her lower mainland community called the Purple Angels Memory Café. The group meets four times a month, and sometimes outdoors in summer when the weather is beautiful. Every second week, it’s the Army and Navy Club for a beer and live music. Members take turns bringing refreshments and treats and have fundraised up to $300 to put towards games and activities they can play together. The group is a wonderful way to connect with others, share similar experiences, and gain support and a powerful sense of belonging. The best part? Membership is free. “The gift [members] give to me is so much more than could ever be paid,” said Norman. ​ One new member who joined a couple of weeks ago turned to Myrna as he was leaving the Army and Navy Club and said, “Myrna, I feel different now. The music touched something inside of me.” ​ “I still get the shivers thinking about it,” Norman said of the comment. It’s revelations like this one that drew her to this work. ​ For more information or to check out the Purple Angels sometime, email Myrna Norman at: the.normans@shaw.ca REPRESENTATION MATTERS The power of seeing our experiences in the stories of others. Watch Full Event HERE Reverend Deborah Liang has been a minister in the United Church of Canada for 37 years, the last four at Pacific Spirit Kerrisdale. She's seen how good communities gather around people in both their joys and troubles, contributing immensely to their quality of life. She also served as chaplain at a rural hospital and learned so much from nurses and program staff there about support, respect and care for people with dementia. Shared values and perspectives. Watch Full Event HERE THE POWER OF SUPPORT FROM OUR FAITH & CULTURE GROUPS One Vancouver man who has been advocating for the treatment and care of people with dementia ever since his dementia diagnosis over a decade ago, discusses how dementia is viewed through various cultural lenses. He explains how those lenses affect families' and individual's responses to diagnosis and decisions around treatment. Watch Full Event HERE RESPONDING TO DEMENTIA THROUGH A CROSS-CULTURAL LENS BC artist and dementia advocate Granville Johnson talks about the importance of trusting one's sense of self above all else when living with dementia. "The world might not know we're capable, but we can know it and live it and continue to pursue our dreams." Johnson lives in remote part of British Columbia where he's currently working on a novel. Watch Full Event HERE TRUSTING OUR SENSE OF SELF ABOVE ALL ELSE When Lester was first diagnosed with dementia, he and his wife and care partner Cindy found that some of their friends and family reacted with disbelief. Others weren't sure how to talk to him. Sharing the Flipping Stigma toolkit with their church and social communities gave the couple a chance to contextualize dementia for those who didn't know much about it. The toolkit allayed fears, provided reassurance, and ultimately resulted in Lester AND Cindy feeling they could open up more about his diagnosis, feel less shame, and share more of their journey with the people they cared about. The toolkit helped them feel much more deeply understood. Watch Full Event HERE ON BRAVERY AND THE POWER OF SHARING OUR STORY Bill Heibein continues to live on the farm he shared with his late wife Heather just outside Kakabeka Falls, Ontario. When he was diagnosed with dementia in 2000, doctors told him he'd have about five more years to live "usefully". Twenty-two years later, he has proven them wrong. In addition to caring for his horses, Bill volunteers as an advocate with the Northwest Dementia Working Group, helps run Dementia Cafes in the community, and is passionate about encouraging others with lived experience to get involved, advocate for themselves, and find purpose. Bill says it's that deep sense of purpose that's fuelled his ability to thrive with dementia for so long, and he's confident others can do the same. Bill Heibein's Journey with Dementia Watch Full Event HERE HOW FOCUSING ON A PURPOSE BUILDS RESILIENCE When COVID-19 threatened to halt all their efforts in their tracks, Andrea Sara and her team found was to move online, gather virtually, solve problems, and dream big anyway. They worried for seniors who'd been hit particularly hard by increased isolation and wanted to ensure everyone in their community felt seen and supported. So, they went outside. They sought out "soothing spaces" where they could "feel safe socializing". That's how the Fireweed Club came to be. These days the DRA has its hand in so many wonderful initiatives, all which support inclusion, environmental awareness, and social engagement. A community works together to be more inclusive. Watch Full Event HERE MAPPING DEMENTIA-FRIENDLY CULTURE Dementia Educator and community advocate Helen Murphy has dedicated her career to making the North Shore and surrounding communities more dementia-friendly. She provides training for North Shore organizations, speaks to community groups, and volunteers in developing new programs and opportunities for people with dementia to live better lives in a community that is "wise, inclusive and socially integrated". Watch Full Event HERE ON THE VALUE OF INTERGENERATIONAL CONNECTION The Building Capacity Project team in Thunder Bay, Ontario partners with the Northwest Dementia Working Group on a number of fantastic community initiatives. The team is very grateful to the NWDWG members who have volunteered to help run some of their Dementia Cafes over the years, for instance, as these cafes are a great opportunity for people in the community to witness for themselves how important representation is, how much capacity there is among people with lived experience, and to be a apart of breaking down stigma. THE NEED FOR PEOPLE WITH DEMENTIA IN ADVOCACY ROLES Lynn Jackson is an action group member with lived experience who played a key role in developing the Flipping Stigma Toolkit, a new online resource helping educate caregivers, people with lived experience, researchers, and the public at large about how to respond to stigma around dementia. Jackson talks about how important it is for care partners to empower people with dementia to stay engaged and active. Fostering autonomy while supporting someone with dementia works to maintain their sense of personhood. Treating them like they're sick makes them feel that way. Watch Full Event HERE CARE PARTNERS EMPOWERING PEOPLE WITH DEMENTIA Dr. Elaine Wiersma of the Centre for Education and Research on Aging and Health at Lakehead University talks about the need to amplify a wider cross section of voices when it comes to the lived experience of people with dementia. If our exposure of these experiences stays too narrow, we run the risk of silencing important wisdoms, staying uninformed as to the broad range of experiences, and keeping devastating stigmas alive. AMPLIFYING DIVERSE VOICES: THE VALUE OF LIVED EXPERIENCE Art is a powerful vehicle for shifting perceptions and shaping culture. AND it's one way of letting your voice be heard when the words themselves might be too hard to say. Whether it's a poem, a collage, a painting, or a dance, the arts can be incredibly helpful and moving for people with dementia at all stages of their journey, and can help the public gain insight into their experience. ART AS A VEHICLE FOR CHANGE

PERSON LIVING WITH DEMENTIA You are invited to help: suggest & plan appealing activity options shape what ongoing social citizenship looks like build new attitudes within your community sustain your quality of life Hub Partners need to hear from you! Please: visit the Current Hub Partner Projects page to see which project is most attractive and contact the Partner sponsoring it.

We'd love to know what you think! Name Your email address What two or three words come to mind when viewing this image? How does this image impact the way you think about Dementia? Would you like to know more about Dementia? Yes No Not sure SUBMIT

Help Lines Top HELP LINES Click on the buttons below. bc211 Information & Referral 311 City of Vancouver 811 BC Health Link BC Seniors' Advocate Dementia Ventures - FirstLink® STAR: Seniors Transportation Access & Resources SAIL: Seniors Abuse & Information Line Greater Vancouver Seniors Distress Lines Ability 411 Assistive Technologies & Equipment AssistList: Home Health Equipment Exchange BC211 PROVINCE-WIDE INFORMATION & REFERRAL SERVICES 24/7 bc211 is a British Columbia, non-profit organization that provides a free, confidential, multilingual (160 languages) information about community, government and social services in BC. As a response to COVID-19, bc211 accepts applications for the Safe Seniors, Strong Communities program, both from seniors wanting help and from volunteers willing to step up and help with non-medical needs. ​ Multilingual : Yes (160 languages) Hours : 24/7 Contact: Dial: 211 Text: 211 Web: https://www.bc211.ca Twitter: @bc211Help Email: help@bc211.ca ​ Return to top bc211 311 City of Vancouver 311 CITY OF VANCOUVER Help line within the City for seeking information about operations and services or to report problems. ​ During COVID-19 only use 311 for urgent requests or language interpretation. Otherwise use online chat and email at City website. ​ Multilingual : Yes ​ Hours : 7am to 10pm daily Live chat 9am-4pm ​ Contact: Dial 311 within Metro Vancouver. Outside Vancouver: 604-873-7000 App: VanConnect Web: https://vancouver.ca/your-government/contact-the-city-of vancouver.aspx ​ Return to top DEMENTIA VENTURES FIRST LINK ® DEMENTIA HELPLINE If you have questions about Alzheimer’s disease or other dementias, call the Alzheimer Society of B.C.'s First Link® Dementia Helpline for information and support (toll-free): ​ Dial: - English: 1-800-936-6033 (Monday to Friday, 9 a.m. to 8 p.m.) - Cantonese and Mandarin: 1-833-674-5007 (Monday to Friday, 9 a.m. to 4 p.m.) - Punjabi: 1-833-674-5003 (Monday to Friday, 9 a.m. to 4 p.m.) Web: https://alzheimer.ca/bc/en/help-support/find-support-bc/first-link-dementia-helpline ​ Return to top FirstLink Dementia Helpline 811 HealthLinkBC 811 HEALTHLINK BC 811 is a free-of-charge provincial health information and advice phone line available in British Columbia to speak to a health service navigator, who can help you find non-emergency health information and services; or connect you directly with a registered nurse, a registered dietitian, a qualified exercise professional, or a pharmacist. ​ Multilingual : Yes (130 languages) For translated resources in French, Arabic, Chinese, Farsi, Punjabi, Spanish and Vietnamesego to https://www.healthlinkbc.ca/services-and-resources/translated-resources Hours : 24/7 ​ Contact: Dial: 811 Web: https://www.healthlinkbc.ca/ For nursing services: https://www.healthlinkbc.ca/nursing-services For dietitian services : https://www.healthlinkbc.ca/dietitian-services For pharmacist services: https://www.healthlinkbc.ca/pharmacist-services For qualified exercise professionals: https://www.healthlinkbc.ca/physical-activity-services ​ Return to top STAR: SENIORS TRANSPORTATION ACCESS & RESOURCES Need help getting around Vancouver? This is an initiative of B.E.S.T. (Best Environmentally Sound Transportation) in cooperation with bc211 for telephone assistance. Also at STAR website, find transportation options: public transit, HandyDart, community shuttle services, volunteer ride programs, walking, cycling & triking, taxi & private drive services, car sharing. Dial: 211 Web: https://starcanada.ca/transportation-options-for-seniors-metro-vancouver ​ Return to top STAR BCC SENIORS ADVOCATE Speak with an Information & Referral analyst or consult website about health care, housing, income supports, personal supports, transportation. Seniors’ services research reports and Long-term Care Quick Facts Directory. Provide feedback on seniors’ services. Hours: 8:30 a.m. – 4:30 p.m. Monday to Friday (except statutory holidays) Contact: Dial: toll-free 1-877-952-3181 or in Victoria 250-952-3181 Web: https://www.seniorsadvocatebc.ca/ ​ Return to top BC Seniors Advocate SENIORS ABUSE & INFORMATION LINE (SAIL) SAIL is a province-wide confidential service for older adults, and those who care about them, to talk to a trained intake worker about abuse or mistreatment. Seniors will receive information and support about issues that impact their health and wellbeing. Multilingual: Yes, upon request (180 languages) Hours: 8am-8pm 7 days/week (excluding holidays) ​ Contact: Dial: 604-437-1940 or toll-free 1-866-437-1940 TTY equipment: 604-428-3359 or toll-free 1-855-306-1443 Web: http://seniorsfirstbc.ca/programs/sail ​ Return to top Seniors Abuse & Information Line (SAIL) CRISIS CENTRE OF BC Immediate access to barrier-free, non-judgmental, confidential support and follow-up to youth, adults, and seniors throughout 24/7 phone lines and online services. The Distress Services program provides support to vulnerable individuals across British Columbia. Multilingual: Yes (140 languages) Hours: 24/7 distress phone line and online chat services between noon and 1:00am Contact: Dial: Vancouver Coastal Regional Distress Line: 604-872-3311 Anywhere in BC 1-800-SUICIDE: 1-800-784-2433 Mental Health Support Line: 310-6789 Web: https://crisiscentre.bc.ca/ Chat: Adults: www.CrisisCentreChat.ca (Noon to 1am) ​ Return to top Crisis Centre of BC Ability 411 ABILITY 411 Web-based service for answers to questions and practical information about technologies, tools and equipment that increase independence and wellbeing for BC seniors, and support their families and care teams. Multilingual: Use an online translation app Web: https://www.ability411.ca/find-answers Ask a question https://www.ability411.ca/ask-new-question ​ AssistList ASSIST LIST “Helping simplify the exchange of home health equipment for our community” with blog, resources and searchable database of equipment listings , …”facilitating safe exchanges across Metro Vancouver by creating a network of Community Exchange Zones to help us facilitate safe exchanges across Metro Vancouver. ” Non-profit operated by staff and volunteers; funded by partners and donors. Multilingual: Use an online translation app Hours: equipment list is available 24/7 here Contact: online here with questions